Wednesday, December 31, 2014

Happy New Year!

Ah, new years. Where people go out and drink and stay up to watch the ball drop and kiss their spouse to start the new year.

Goodbye old year! Here is a start to fresh new me!

Am I right?

People ask "What's your new years resolution?"

I get it. We can all use some improvement.

But really, I don't know what to do anymore. But I'm a little depressed today, so maybe my funk is just taking the fun out of it.

I mean, other than quitting smoking (yes I know I'm a horrible horrible person because I smoke. I KNOW!)  I don't really have much on my "list".

There are things I'd love to; workout regularly, organize and declutter out house, do more stuff with the kids, work more in my garden, etc.

But with a chronic illness, I never what I will feel at any given time.

For instance, earlier today, I had planned to do stuff around the house but my blood pressure dropped. Can't do anything when that happens. So I layed on the couch all day watching a marathon of Gilmore Girls.

It was all I could do. So when I don't know what will happen with my body at any moment, it makes "resolutions" harder to make.

I mean, sure I can make them. But sticking to them... Well, that's a whole other thing entirely.

How many have made new years resolutions anyway? Maybe we can all try and push each other to keep them (when we are able anyway).

Sometimes, I know I could. But I allow my disease to be an excuse to not to do because changing is hard and sometimes I'm just too damn tired to care.

My 2014 wasn't that bad, but it wasn't a perfect year either. We lost our dog, but when on a vacation. My kids are healthy and in school. I made the President's list in school. It was a pretty good year.

How about all of you? How was your year? What would you like to change for next year? (And it can't be a random cure for your illness unless you are actually a scientist and already researching and close to finding said cure). Something YOU can actually change for you and your life. Please share below!!

Have a great night! Be safe! And may you have a blessed new year!

I'll be sitting on my couch (actually I'll probably be sleeping) this new years. :) 

Sunday, December 28, 2014

I Need A Vacation

We just took our first vacation. Well, our first real family vacation. In the sense that we didn't travel to a family members house and stay with them. 

We went to Stone Mountain Ga and stayed in a hotel and everything. It was awesome.

The hotel was shitty, but it kept us warm and gave us a place to sleep and shower, so it worked. They also offered breakfast every morning. So that was good. Saved us money on that meal every day.

We went to Stone Mountain Park and got the 2 day pass to go through Snow Mountain, and the Stone Mountain Christmas park. We walked around A LOT!! And with a 3 and 5 year old. It was exhausting. 

We just got home at like 1 in the morning on Saturday and I'm still recovering.

Isn't that funny... You go on vacation and you need another one when you get back home.

Unpacking was worse than the packing was. And my body is soooooo sore from all the activities we did. We were going like non-stop. For 5 days straight! 

Having EDS and going on a 5 day trip packed filled with activities was probably not the smartest thing to do. Plus sitting in the car for as long as we did to get there and then back. I'm a frickin mess now.

My chiari is flaring up, my body is screaming at me. It will probably take me another week to get back to where I was before. 

But it was worth it. Some things are worth the pain and all the shit that come with having a chronic illness. And this was definitely one of them.

We all had a blast and my kids were soooo happy spending so much time us. My boyfriend works a lot normally, so we don't really get to spend much time with him. It was wonderful. 

Although I'm paying for it, and will be for awhile longer, I wouldn't take it back for a second.

But I wish I could take my own little vacation right now and get away from all of them so I can sleep for days. 

What things have you done that you had to pay for later? Was it worth it for you? What about a time it wasn't worth it after? Share your experience by commenting below!! :)

Friday, December 19, 2014

You're Such A Drama Queen


What was that? Your arm was severed off? Stop over reacting. You do have another one! Geez. 

So selfish for wanting two arms... I know people like that too... I mean, mostly because I'm one of them!

I hate that when I say anything to anyone that DOESN'T have EDS, they look at me like I'm such a drama queen and just over reacting. 

Me: "Ouch! My finger just dislocated! *Pop* Okay, back in." 
Someone else: "Ugh! Seriously?! You're finger did not just dislocate!" 

Right... Because all my doctors are wrong and you know all.... Sorry all-wise-one.

I just don't know what I need to do to be taken seriously! Even my doctors have totally dismissed me when I've told them. CORRECTION, SHOWED THEM!! things and they still just look at me like I'm crazy for complaining my joints fall out of place. 

Like I'm this insane person and shouldn't be complaining about such trivial things. As if I ran to the ED for a paper cut or something.

What is it?! Because I'm a young adult woman? Probably.. And I don't really know why. I mean... Kids get sick and everyone says, "Aw. Poor thing." Old people get sick and people feel bad because they are old.. But young-ish adults and middle aged people... Well.. We are just drug seeking attention whores. 

Why?! I'm pretty sure everyone gets sick! Why the hell is it so hard to be taken seriously?! 

I could see it now. I walk into the ED because my stomach explodes. They put my insides back in and put a bandaid (which I'm allergic to) over the gaping whole and send me home. But don't forget the $45,000 bill for the bandaid.

I am 25. Not a child anymore but not old enough to remember the segregation either. So I guess that means I can never be ill or have problems without being called a drama queen. 

Who makes up stuff like this?!! Why would I want to seek medical attention if there wasn't a problem?! 

Oh, I know.. There is a disease about that. I KNOW!! 

BUT!!! If they thought I was just crazy and attention seeking and had Munchausen's, then why aren't they trying to treat that?! Anyone else wonder this shit?! 

Anyone else just a drama queen, drug seeking, over reacting child? Share your stories below!! :)