I am 25 years old, and have two beautiful baby girls (ages 5 and 2). I am an at home mom and a student. I have Ehlers Danlos Syndrome. I feel like saying it that way makes it all AA meeting ish. Oh well. That is the reality of it! So What the heck is Ehlers Danlos you ask? No worries. I have an answer. EDS (Ehlers Danlos Syndrome) is a genetic connective tissue disorder. Connective tissue?! Ya, that's all the collagen in your body. Collagen makes up all your organs, blood vessels, skin, ligaments, etc. It's really the 'glue' that holds your body together. And mine is faulty. This can lead to issues anywhere there is collagen. For example, my ligaments are super lax (too stretchy) so my joints randomly dislocate or sublax (partial dislocation). Awesome, right?! Not really. My body is literally falling apart. But no need to go all Debbie Downer right now! This is just my intro!!! I'll get to all that depressing shit another day when I am angry about it. Right now, I am okay with it. Even though my shoulder feels like its on fire right now as I type this.
So.. Not only do I have EDS, I also have a few other disorders that are caused by my EDS. I have many herniated disks in my spine, spinal osteoporosis, craniocervical instability, Chiari Malformation (skull shaped wrong and brain is falling out of head into brain stem), adult developed scoliosis, EPI (exocrine pancreatic insufficiency), and a few other issues that have yet to be solved.
So, there is me in a condensed form. Hope you enjoy reading about my stupid body and my life. :)
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